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Information on Medicare coverage of Medications

National Disability Leadership Alliance - Principles to Ensure Consumer-Driven Managed Care

The National Disability Leadership Alliance has developed the following principles and urges that they be applied fully by both the Centers for Medicare and Medicaid Services (CMS) and individual state Medicaid programs as they examine ways to broaden the application of managed care to beneficiaries with significant disabilities in the interest of containing spiraling health care costs. The National Disability Leadership Alliance (NDLA) is a coalition of 14 leading national disability organizations led by individuals living with significant disabilities themselves and supported by grassroots constituencies living with disabilities in all states and the District of Columbia. Click here to read the document (PDF, 239KB, 6 pages).

Emotional CPR Webinar - An Introduction to Assisting Others Through Emotional Crisis

Click here to view the PowerPoint presentation (3.98MB)
PowerPoint presentation as a PDF (841KB, 36 pages)
Click here to listen to or download an audio file of the webinar (82.3MB)

Open Dialogue and Dialogical Principles

Becoming Dialogical: Psychotherapy or a way of life? - by Jaakko Seikkula

The Australian and New Zealand Journal of Family Therapy, Volume 32 Number 3 2011 pp. 179–193 (PDF, 116KB, 15 pages)

Dialogical Recovery from Monological Medicine by Daniel Fisher

Dialogical Recovery of Life by Daniel Fisher

Emotional CPR (eCPR)

Emotional CPR (eCPR) is an educational program designed to teach people to assist others through an emotional crisis by three simple steps: C = Connecting P = emPowering, and R = Revitalizing.

Visit the website at http://emotional-cpr.org

New Organizational Sustainability Training Available

The CAFÉ TA Center has created a two-part training on organizational sustainability. Organizational Sustainability, Part 1 is an overview of current trends in the nonprofit arena and the impact these could have on consumer run organizations. The presentation also builds a base of understanding for organizational leaders and partners that will enable them to effectively begin a sustainability process to build the capacity and longevity of their organization.

To view Organizational Sustainability, Part 1 follow this link!

New Online Training: Getting a Degree through Supported Education

Too often, individuals with mental health challenges have difficulty succeeding in a post-secondary educational environment. With the onset of psychiatric symptoms often occurring in late adolescence and early adulthood, many people find their education interrupted, and consumers often have a desire to return to their higher education later in life. Supported education offers a means for consumers to share in the professional success and sense of empowerment that comes with educational achievement. You can view Getting a Degree through Supported Education on the CAFE TAC website by following this link

Organizational Sustainability, Part Two is a compliment to Part One, and provides detailed guidance on developing a functional sustainability plan for your organization. The training features a targeted focus on four key areas; Accountability, Financial Security, Organizational Management, and Relationships. Along with this training, you will also find an Organizational Sustainability Screening and a template for Organizational Longevity Planning, along with guidance on how to use them with your organization. You can also download the Nonprofit Development and Sustainability Resource Sheet to assist you in locating additional sustainability technical assistance.

To view Organizational Sustainability, Part Two follow this link

SAMHSA Consumer-Operated Services Evidence-Based Practice KIT now available from SAMHSA

Visit the SAMHSA website for more information - http://store.samhsa.gov/product/Consumer-Operated-Services-Evidence-Based-Practices-EBP-Kit/SMA11-4633CD-DVD.

New Guide on Supported Education Available

This guide, produced by the Cafe TA Center, provides some
basic information about what supported education is, how it works and
what it can do for consumers. It’s available online now at the CAFÉ TA
Center website. Click to download (PDF, 549KB, 8 pages)

Online Training: Consumers with Lived Experience: Critical Partners in the Mental Health System of Care

By the Cafe TA Center: www.cafetacenter.net

This training explores the trends, approaches, and opportunities in workforce development involving hiring consumers of mental health services as Peer Specialists or Consumer Supporters. Please check it out here!

Cultural Competency in Mental Health Peer-Run Programs and Self-Help Groups: A Tool to Assess and Enhance Your Services

Click to download - Cultural Competency in Mental Health Peer-Run Programs and Self-Help Groups: A Tool to Assess and Enhance Your Services (PDF, 1.34MB, 36 pages)

Cultural Competency in Peer-Run Programs: Results of a Web Survey and Implications for Future Practice

Click to download - Cultural Competency in Peer-Run Programs: Results of a Web Survey and Implications for Future Practice (PDF, 90KB, 9 pages)

Violence and Mental Illness: A Review by Daniel B. Fisher, MD, PhD, Executive Director, National Empowerment Center

The recent tragedy in Arizona has prompted the media to once again falsely equate mental illness with violence. The following review of carefully conducted studies shows that persons with mental illness are no more likely than the general public to commit a violent crime. Click here to read the review.

New Affordable Care Act Brochures

HHS has developed a new series of brochures to help Americans understand the Affordable Care Act (ACA), and how it is improving consumer protections, lowering costs and increasing coverage.

You can find the overview brochure at www.healthcare.gov/center/brochures/for_you.pdf (PDF, 2.79MB, 4 pages). HHS also is developing brochures for specific audiences which HHS will continue to produce. These can be downloaded at www.HealthCare.gov/center/brochuress

There is a lot of disability information in general at these links as well as in some of the brochures. Keep checking for more specific information as more brochures are developed.

Building Bridges: Law Enforcement and the Mental Health Advocacy Community

This report by the International Association of Chiefs of Police highlights the importance of focusing on recovery rather than symptom management. Key recommendations include: avoiding the use of restraint and other control mechanisms unless absolutely necessary for public safety; emphasizing involvement of consumers, family members, and other advocates in Crisis Intervention Training and related training; and promoting interagency collaboration to ensure community integration of persons with mental health issues. [For the full report, click here]

Funding the Movement

A guide to social justice fundraising by Ellen Osborne and Heather Peck, VOCAL - VA [Click here to download (PDF, 3.84MB, 74 pages)]

Pillars of Peer Support: Transforming Systems of Care through Peer Support Services

The Pillars of Peer Support Services Summit
The Carter Center, Atlanta, GA, November 17-18, 2009

[Click to view Pillars of Peer Support (PDF, 846KB, 48 pages)

Quality Improvement Committee Manual

The California Network of Mental Health Clients (CNMHC) voted to create a QIC manual as a step-by-step guide for clients to participate knowledgeably and effectively on the Quality Improvement Committees. This manual will explain how performance improvement begins. It will explain State-to-County QIC policy & guidelines; help diminish the vagueness associated with the function of QIC; explain and simplify complicated and confusing data; and explain the importance of collecting data that is accurate, appropriate, and which reflects the entire process. It can serve as a handbook and be used universally as a teaching aid. [Click to view the Quality Improvement Committee Manual (PDF, 505KB, 59 pages)]

New fact sheets available from the National Center for Complementary and Alternative Medicine (NCCAM)

Shared Decision Making in Mental Health

An archive of the January 21, 2010 Webinar, Shared Decision Making in Mental Health: Panel on Consumer Perspectives and Experiences, is now available on the SAMHSA Shared Decision Making website at http://mentalhealth.samhsa.gov/consumersurvivor/shared.asp.

Alternatives 2009 Health and Wellness Screening Report Available

Currently, Americans who have major mental illnesses die an average of twenty-five 25 years earlier than the general population (NASMHPD, 2006 and other sources). They experience the largest health disparity in the United States. Sixty percent of premature deaths are due to medical conditions such as cardiovascular, pulmonary and infectious diseases which are frequently caused or worsened by controllable lifestyle factors (physical activity, smoking, access to adequate healthcare and prevention services, diet and nutrition, and substance abuse as well as others). In responses to these alarming statistics, the Substance Abuse and Mental Health Services Administration (SAMHSA), Center for Mental Health Services which supports the annual Alternatives Conference to provides a forum for peers from all over the nation to meet, to exchange information and ideas, and therefore choose to offer effective proactive strategies through a health and wellness screening service. The screening was conducted on October 20-30, 2009 and was planned, coordinated and managed by peer provider staff from the Institute for Wellness and Recovery Initiatives at Collaborative Support Programs of New Jersey. The event was staffed by peers with nursing and health care backgrounds. [Click here to read the full report] (PDF, 56KB, 6 pages)

New research study finds unlocked, mental health consumer-managed, crisis residential program produce better results than locked, inpatient psychiatric facilities

For adults with severe psychiatric problems, consumer-managed residential programs may be the way to go, a new study suggests. A recent American Journal of Community Psychology study compared the effectiveness of an unlocked, mental health consumer-managed, crisis residential program (CRP) to a locked, inpatient psychiatric facility (LIPF) for adults for severe psychiatric problems. Participants in the CRP experienced significantly greater improvement on interviewer-rated and self-reported psychopathology than did participants in the LIPF condition; service satisfaction was dramatically higher in the CRP condition.

Title of Study: A Randomized Trial of a Mental Health Consumer-Managed Alternative to Civil Commitment for Acute Psychiatric Crisis. Greenfield, TK, Stoneking, BC, Humphreys, K, Sundby, E, and Bond, J (2008). American Journal of Community Psychology 42 (1/2):135-144.

Additional Information:

Article announcing the study: www.medicalnewstoday.com/articles/118619.php

Click to view the index of current issue on self-help for the American Journal of Community Psychology

Practice Guidelines: Core Elements in Responding to Mental Health Crises

Individuals experiencing mental health crises may encounter an array of professionals and nonprofessionals trying to intervene and help: family members, peers, health care personnel, police, advocates, clergy, educators, and others. Their approaches in assisting those in crises often vary widely, contributing to the potential for ineffectual responses. Developed by a diverse expert panel that included individuals with mental illnesses, providers, public officials, and advocates, the guidelines presented here define appropriate responses to mental health crises across various situations and environments. [Click to view Practice Guidelines (PDF, 384KB, 26 pages)]

New Guidebook from the National Association of State Mental Health Program Directors

Paving New Ground: Peers Working in In-Patient Settings. The guidebook is 110 pages, and an excellent resource on Peer Support Recovery. (PDF, 934KB)

Comfort Rooms by Gayle Bluebird (PDF of a PowerPoint, 35 pages, 610KB)

Book Reviews

Books about mental health issues, particularly from the consumer perspective

Texas Crisis Alternatives Project

Cost Effectiveness of Nine Crisis Residential Modalities, 1996 (Executive Summary, PDF, 12 pages, 68KB)

Consumer-Directed Medicaid Services more Effective than Professionally-Directed Services

See Also
In the Driver's Seat: Guide to Self-Direction in Mental Health

The Florida Self-Directed Care Program -A Practical Path to Self-Determination (PDF 181KB - 10 pages)

The Contribution of Self-Direction to Improving the Quality of Mental Health Services - A Major New HHS Study on Self-determination

The above SAMHSA funded study by Ce Shen, Ph.D. and others published in the November 2008 Psychiatric Services found that self-directed care works well for persons with mental illnesses. This study examined the effectiveness of the Cash and Counseling Demonstration and Evaluation program for those with a diagnosis of mental illness.

Adults with mental illnesses in the program compared to those receiving usual Medicaid services were found to be more satisfied with their paid caregivers reliability, schedule, performance, relationship, overall care arrangement and with their quality of life in general, had fewer unmet needs in terms of household activities, transportation and routine health care at home, had no more injuries or other adverse health outcomes, and were able to manage the cash option to hire caregivers and purchase care-related services and goods.

The study abstract can be found at web site http://www.bazelon.org/LinkClick.aspx?fileticket=OZlEirtDYx4%3D&tabid=104 (.

EEOC Issues Q&A Guide On Disabilities/Employment

Carrie Mason-Draffen Newsday September 4, 2008

The U.S. Equal Employment Opportunity Commission has issued what it calls a comprehensive question and answer guide on the rights of workers with disabilities.

The guides looks at how the Americans With Disabilities Act, which the EEOC enforces, applies, or doesn't, to a wide range of performance and conduct issues.

The topics discussed include performance and conduct standards, attendance, dress codes, drug and alcohol use and the circumstances in which employers can ask questions about employees' disabilities.

"The EEOC continues to receive numerous questions on these topics from employers and from individuals with disabilities, indicating that there is still a high level of uncertainty about how the ADA affects these fundamental personnel issues," said commission chair Naomi C. Earp.

To view the guide go to: www.eeoc.gov/facts/performance-conduct.html

Best Practices in Supportive Housing and Employment: The Employer's Perspective

Third in a series of webinars sponsored by the Corporation for Supportive Housing and Enterprise Community Partners

To truly be successful, an employment program for tenants of supportive housing must learn to cultivate positive relationships with employers.  Yet making the business case for hiring individuals with many (perceived or actual) barriers to employment—including criminal records, mental illness, substance abuse issues, and/or a limited work history—can be difficult and intimidating.  However, there is a strong business case to be made for why employers should hire your residents – and it really works.

Hear from an acclaimed employment placement agency that works with employers to find jobs for ”hard to place” individuals. Click to view an archived recording.

In the Driver's Seat: Guide to Self-Direction in Mental Health

The Bazelon Center and the UPENN Collaborative on Community Integration have produced a guide to help consumers and other advocates obtain policies that give consumers a primary role in their recovery planning and greater control over how resources are spent to meet their needs. Titled In the Driver’s Seat, the 40-page document includes advocacy strategies and examples of existing programs’ approaches to self-directed care. Fact sheets summarize important aspects such as financing. [Click for additional information and PDF download]

National Warmlines for Mental Health Support

In the aftermath of the hurricanes Katrina and Rita, people need someone to talk with. There are not nearly enough counselors to provide these services face-to-face. So NEC has compiled a list of warmlines to partly meet this need. [Click to visit Warmlines with National 800 Numbers]

The Florida Self-Directed Care Program - A Practical Path to Self-Determination (PDF 181KB - 10 pages)

Information on New Medicare coverage of Medications

Consumer-Run Statewide Organizations

Systems Advocacy: What It Is and How to Do It

This free audiovisual presentation by the UIC National Research and Training Center covers grassroots organizing, how to create an advocacy plan, negotiation strategies and tactics, and "nuts and bolts" skills building including effective advocacy letter writing, phone calls to policy makers, and managing in-person meetings. Funded by NIDRR and CMHS, the archived webcast is available at www.cmhsrp.uic.edu/nrtc/advocacywebcast.asp.

Connectedness and Citizenship: Redefining Social Integration by Norma Ware et al (pdf- 81 kb, 6 pages)

Assessing the Promise

An Evaluation of the Work of the Consumer and Consumer Supporter Technical Assistance Centers including the National Empowerment Center, 2002 Report [Click to view Assessing the Promise (PDF 1,623KB, 63 pages)]

ROSI (Recovery Oriented Systems Indicators)

Excerpted from the ROSI Research Team’s 2005 handout entitled Piloting the Recovery Oriented System Indicators (ROSI) Administrative Data Profile and Consumer Self-Report Survey. Please note additional use guidelines in the ROSI instrument description section [Click to view ROSI (PDF - 320.41KB, 17 pages)]

Measuring the Promise: A Compendium of Recovery Measures, Volume II

One of a series of materials produced by the Evaluation Center@HSRI [Click to view Measuring the Promise (PDF - 7,917KB, 254 pages)] Please note: This is a very large file.

An Evaluation of Peer-Delivered Mental Health Disaster Relief Services in New York City - By Hardiman, et al. May 2005.

This is an evaluation of the impact of peer delivered mental health services as part of Project Liberty following 9/11 [Click to view An Evaluation of Peer-Delivered Mental Health Disaster Relief Services in New York City (PDF - 965.83KB, 79 pages)]

Self-help Clearinghouse Newsletter on Role of Peers in Disaster Relief (PDF - 575KB, 4 pages, published June, 2006)

From Relief to Recovery

Peer Support by Consumers Relieves the Traumas of Disasters and Facilitates Recovery from Mental Illness.  By Daniel Fisher, National Empowerment Center (NEC), with assistance from Kay Rote, Oklahoma; LaVerne Miller, New York; David Romprey, Oregon; and Beth Filson, Georgia [Click to view From Relief to Recovery (PDF - 432KB, 15 pages, published September, 2006)]

Voices of Transformation: Developing Recovery-Based Statewide Consumer/Survivor Organizations 

By the National Empowerment Center (NEC) and the Recovery Consortium, published October 2006. Please note: This is a very large file.  For additional information go to the Recovery Consortium page. [Click to view Voices of Transformation (PDF 2MB, 104 pages)]

Empowerment from Participation in Consumer-run Organizations

Effects of participation in consumer-operated service programs on both personal and organizationally mediated empowerment: Results of multisite study by E. Sally Rogers, ScD; Gregory B. Teague, PhD; Carolyn Lichenstein, PhD; Jean Campbell, PhD; Asya Lyass, MA; Ren Chen, MS; Steven Banks, PhD.  [Click to view Empowerment from Participation in Consumer-run Organizations (PDF, 15 pages, 233KB)]

For Trauma-Informed materials & trainers, email jmckinney@mhasp.org

Supportive Housing for People with Mental Illness: Regaining a Life in the Community. 

View archived 9/25/2007 Webcast.  (Click to view details of this and links to other webcasts)

Bazelon Offers Model Policy for Addressing Student Mental Health

The Bazelon Center for Mental Health Law has released a model policy to help colleges and universities develop a non-discriminatory, non-punitive approach to students in crisis because of mental health problems.  It is available as a free download at www.bazelon.org/pdf/SupportingStudents.pdf (518 kb, 10 pages)

Guide on Seclusion and Restraint

National Association of State Mental Health Planning Directors Guide on Seclusion and Restraint (pdf, 246KB, 35 pages)

Consensus Statement on Mental Health Recovery

SAMHSA Issues Consensus Statement on Mental Health Recovery - 2/16/06 (pdf, 142KB, 2 pages)

SAMHSA released its plan to implement the New Freedom Mental Health Commission Report

Federal Action Agenda: First Steps, 7/22/05

Dan Fisher's Presentations on Recovery

A full listing of Dan Fisher's Presentations on Recovery